Today has been good also. Got to get out for a wagon ride for a bit, we read books and cuddled in a little common area with couches. He is Such a little trooper.
We are adjusting to this diet. It is just 100% opposite from how we usually eat. He can only have white bread (wheat bread is on the bad list ) and he can have as much sugar as he can eat. They actually recommend eating a lot is sugar (we usually really limit his sugar, I mean I still dilute his occasional juice for goodness sakes) only because he turns into a wild man with too much sugar. The reason for now increasing his sugar is to replace the calories he is not getting from the fat. The dietician recommended adding fat free substitutes such as ranch or fat free sour cream to substitute not being able to cook with by olive oil, etc? He cannot even have "good" fats like from nuts or avocado. This is just different from the way we normally eat. We generally try to stay away from foods high in preservatives and artificial sweeteners, but a lot of the fat free foods are really high in these things. But, oh well we will what we have to to get him better. So far he hasn't complained too much about it. when he asks for pancakes, or even Cheerios ( yea they are in the bad list ) we just say they don't have them here. I hope he accepts that answer when we go home. I am going to have to empty out all of our "bad foods" like cheerios, wheat bread, almonds, etc out of his view.
The one problem that is going to be an issue is obviously Claire cannot follow this diet, and they always want what the other is having, so we are planning on buying identical things for them but one version for Claire and another for lucas. Like regular and fat free string cheese, yogurt, milk, etc. so hopefully it won't be that big of deal.
We have had tons of great family and friends come to visit. Lucas is one lucky boy!